My Struggle continues…

Where I left off was I had the diagnosis (finally) had the radioactive iodine, on the synthetic thyroid meds. I also had accelerated aging so went through menopause.  Uuuuugggg.  So now I am struggling with menopause symptoms. ETC. No need to go into detail.. look them up if you want to know specifics.

The worst thing I notice now is my muscles are gone. It was always pretty easy for me to get muscle tone. ( My brother would always get so jealous, ha ha thanks Brian) but it was always just easy. Now it was not like I was starting at zero but in the negatives.  Mush is what I would call it.

So I am still working (as always, who is there to pay my bills? No,one) and  I am driving about 1 hour to work every day. About 2 hours total.

Let me talk about how I feel. Now this is a couple years after the radiation to kill the thyroid.  I don’t feel very well. I am still having to have the synthroid, levoxel etc. doses changed.

Oh, by the way…info about thyroid meds they may or may not tell you.

  1. DO NOT GET THE GENERIC BRAND.

 

story continues..

My Struggles

Hello again,

My story continues, where did I leave Off? Oh yes,I finally had the nice radioactive Iodine to kill the thyroid.  Then the Drs. will put you on “synthroid” or synthetic thyroid.  All the way through this I am still feeling weak.  Lack muscle tone, trying to get my shape back.

After telling the Dr. I still don’t feel good she does some more tests and guess what? Since I was so “hyper thyroid” for so long that put me into accelerated aging and goodie, I have now gone thru menopause.  Well that answered several more questions and now I “should or should not” depending on who you talk to, have hormone therapy.  To be hormonal imbalanced or not, that is the question.  So I did the replacement for awhile but then with all the breast cancer scare, they say I should stop.

 

My Symptoms of Graves Disease-Hyperthyroid.

Early symptoms:
Tremors in hands
Heart pounding especially around 11pm at night.
That’s it.
Really in the beginning I didn’t really feel too bad except for these few things.
I did Not have weight loss.
I always had depression prior, no change there.
I always had insomnia prior, no change there.
I always felt tired. Work alot and have so much I have to do.
I still was working out.

After a year or two,then I began to have other symptoms:
Weight Gain
Muscle weakness
Times of extreme heart pounding, during the day (often)
Eyes where hurting (like when you have the flu)
Extreme Water Retention
More weight gain.. and more gain….

Here we go…

Getting sick 🙁

Around 1998 I started to get sick. Actually I had symptoms several years earlier but they did not show enough for me to realize at the time what was really going on with my health.

My muscles started to get soft.  I was losing tone and definition. My heart started pounding at night when I was laying in bed.

But there was still work to be done, things to be taken care of.  I was a manager at a hair salon and I just kept going.

I was trying to work out but it was getting really hard to do.  I was getting short of breath.  I was gaining weight. I was not eating any more than I ever did normally but the weight kept going up and up. I had started at 125 lbs. and was a size 8.

Now my weight is 165 lbs and I am a size 12.

I don’t get it.

So I started the rounds of doctors.  I would go in and tell them something is wrong.  The doctor would talk to me for a minute and say ” as we age, thing don’t work as well, blah blah blah.”  I could not get the doctors to understand that I AM AN ATHLETE!!!!  I love working out. I can work out for hours!!!

Around that time my hands started shaking really bad. So then one doctor put me on an anti-anxiety medication.

Well that didn’t do much for me.  By now I was hardly working out because I was feeling so bad that I was almost passing out when I tried.  So I got bigger and more soft and mushy.

Obviously very sick I went to dr and dr.  I was also retaining water REALLY bad at this point. Gasping for air I couldn’t walk even 20 feet without needing to stop and rest. Again I made dr appts.  I went into the dr and told him how bad I felt and that “something is wrong”.  Dr. says you have “Congestive Heart FAILURE” I say what do we do about that. Dr gave me the great advise of we will just keep and eye on it.  I made a comment about my Swollen legs, and asked if I can take a diuretic. Oh NO don’t ever do that says he. I again say, something is wrong, I am trying to work out, and I am drinking lots of water like I am supposed to. Dr says ” that’s your problem right there” I say what? He says all superior ” you are drinking too much water”. It was immediately time for me to leave, so I got up and got dressed.   He says ” what are you  doing”? I answered ” I have to leave NOW”

Later in the evening (after urgent care was closed) I took myself to the HOSPITAL Emergency. As I hobble in, legs so swollen I could barely walk, gasping for air I went to the intake nurse. “please, can you help me” They get me right in and determine I am having heart failure do to water retention.  They gave me potassium and a diuretic. That night I lost 25 lbs of water out of my body.  I repeat, 25 lbs. of water in one night.  I could actually feel it leaving my brain.  Still they helped me immensely but naturally they don’t know the cause and get with your regular dr. for the follow up..  Which I did, again the drs. had no idea why this was happening.  Dr appt, heart dr appt. nothing is diagnosed but I as still so sick. Again at the regular dr for more follow up the dr says ” well your thyroid is still high”  That was a shock as I had never had “high thyroid” in my life. That got me to thinking and looking on the internet.  Yes, I looked on the internet and diagnosed my own illness.  I was “Hyperthyroid”.  What you say, how can that be as you where gaining weight and getting bigger and bigger. Yep, when a person is hyperthyroid for a long time something strange happens to their body, you go into accelerated aging, your body retains water, you don’t sleep at night but you are exhausted during the day. And you will start to gain weight and get Big.

One night about 11 pm as I was trying to sleep my heart started to beat faster and faster.  I took my pulse and it was 185 beats per minute.  I do not lie.  I called the nurse and she says “Don’t Move!!”  The next day I was into another dr.  Thank goodness I found this dr. She was a young fresh out of school dr that was willing to listen to me.   She agreed ” hyperthyroid and get to the specialist tomorrow.”

So at last I know what is wrong and the dr. gets my thyroid radiated etc.  Don’t worry he says just take this little radiation pill but you will be fine.  Oh and by the way, flush the toilet 3 times, don’t hold any children and several other stipulations.  Ha, I was sick for 1 year.  If there was a cold bug I got it, everything and everything twice. At least and last I know what was wrong and I can work on getting healed.

Still my muscle tone was so weak.  I was still mushy, where was my athletic body.  Gone, Gone Gone.